As caregiver to someone with lung cancer, you might speak with the care team (PDF) about care options and needs. The team might include oncology nurses, infusion nurses, social workers, and even clinical coordinators or patient navigators if they are available in your area. And don't forget the value of talking with other caregivers, who often share the same challenges and concerns.
Before talking with the care team, however, you and the patient may need to sign a few HIPAA (The Health Insurance Portability and Accountability Act of 1996) release forms. These forms are intended to ensure your loved one's privacy. Failure to sign them may keep you from getting timely information about your loved one's health and being fully involved in his or her care. If you can, get ahead of this issue now. Learn more about how HIPAA (PDF) could affect you as a caregiver.
When talking with the care team, you may need to cover a range of care concerns—from clinical trial participation to decisions about the treatment plan.
When meeting with your loved one's oncologist, you may well have many questions.
They might include:
Questions about your loved one's current health status
Questions about treatment options
Concerned that your loved one no longer wants to continue treatment? Feeling like hope has turned to despair? Inspire the ones you love to accept the ups and downs of lung cancer treatment.